Prestigious NIHR Programme Grant awarded to Sheffield cystic fibrosis research team 25th November 2014

A UK-wide consortium of Cystic Fibrosis clinicians and researchers, led by Dr Martin Wildman of Sheffield Teaching Hospitals and Professor Alicia O’Cathain at the School of Health and Related Research (ScHARR, University of Sheffield) and the CF Trust, has been awarded a prestigious Programme Grant from the National Institute of Health Research (NIHR) to develop and evaluate new ways to support people with CF in their adherence to treatment.

Cystic Fibrosis (CF) is an inherited disease affecting 10000 people in the UK. The lungs of people with CF are prone to infections and daily physiotherapy and inhaled medications are needed to stay healthy. Around £30 million is spent annually on inhaled medications but median adherence has been shown to be only 36%. When people do not adhere to these treatments, it can result in unscheduled emergency care and hospital admission which is distressing to people with CF and their families, and results in increased costs to the NHS.

The research intervention will help people with CF to understand and to measure how much medication they are taking, using new methods and a website that will enable people to interact with their physiotherapists and doctors. The research team will develop a “toolkit” to help people with CF build successful treatment habits. The new methods will be rigorously tested in 10 CF units across the country to make sure the intervention works and is good value for money.

The goal of the research programme is to help people with CF manage their condition and enhance their quality of life, with the additional benefit of significant cost savings to the NHS and the public. Further information can be found at: https://www.shef.ac.uk/scharr/sections/hsr/mcru/actif

The National Institute for Health Research is funded by the Department of Health to improve the health and wealth of the nation through research. For further information, visit the NIHR website (www.nihr.ac.uk).